00:00:03:21 - 00:00:26:19
Brandi
Connection when living with PNH is the most important thing. Without those people, I wouldn’t have been able to really find my doctor, my specialist, or to really be able to see what a future looks like being diagnosed with PNH. I’ll never forget this holiday. You see, just earlier that year, I found out that I was now out of remission.

00:00:26:19 - 00:00:48:24
Brandi
I was 26 when I was diagnosed with PNH. I was working a full-time job, starting my career in HR, and getting that diagnosis was very hard for me. It really rocked my world. In those times, you feel very alone. You feel like you’re the only one going through it, but the connections that I’ve made, that was what really helped me to keep moving forward.

00:00:49:07 - 00:01:11:22
Brandi
Finding connections with other people started with different conferences, different sites, one being myPNHteam. I was able to find people that identified with me that knew what I was going through as well. I was having restless legs syndrome at one time, and so I remember posting a question about that, and you’re able to get responses on “Yeah, I went through that” or “This is how I tackled it.”

00:01:12:10 - 00:01:27:11
Brandi
That is what really helped me to tackle different symptoms in my life and really just find my tribe, my community that understood what I was going through. My name is Brandi Lewis, and I was diagnosed with PNH.