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myPNHteam Stories: Real Stories From Real Members

Updated on August 15, 2023

Meet Brandi Lewis

Brandi Lewis is a blood disorder awareness activist with a passion for helping others, inspired by her 14-year battle with aplastic anemia and PNH.

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Building Your Community: Finding Others With PNH
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Living With PNH: Overcoming Fatigue and Brain Fog
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Meet Maegan Voss

Maegan Voss is a disabled artist living with PNH. They enjoy painting, writing, and sitting with their cat, Moe, at home in
St. Paul, Minnesota.

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A Doctor Who Will Listen: Getting to Diagnosis
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Finding Friends and Dreaming Big: The Importance of Community
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Updated on August 15, 2023

Recent Articles

5 Ways to Manage Fatigue With PNH Anemia

Living with paroxysmal nocturnal hemoglobinuria (PNH) can leave you feeling flat and low in energ...

5 Ways to Manage Fatigue With PNH Anemia

Living with paroxysmal nocturnal hemoglobinuria (PNH) can leave you feeling flat and low in energ...
read article >

Getting Started on myPNHteam (VIDEO)

Welcome to myPNHteam — the place to connect with others living with paroxysmal nocturnal hemoglo...

Getting Started on myPNHteam (VIDEO)

Welcome to myPNHteam — the place to connect with others living with paroxysmal nocturnal hemoglo...
read article >

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

If you’re living with paroxysmal nocturnal hemoglobinuria (PNH), you may have experienced abdomin...

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

If you’re living with paroxysmal nocturnal hemoglobinuria (PNH), you may have experienced abdomin...
read article >

8 Symptoms of Anemia With Paroxysmal Nocturnal Hemoglobinuria (PNH)

Paroxysmal nocturnal hemoglobinuria (PNH) gets its long name from one particular symptom — dark u...

8 Symptoms of Anemia With Paroxysmal Nocturnal Hemoglobinuria (PNH)

Paroxysmal nocturnal hemoglobinuria (PNH) gets its long name from one particular symptom — dark u...
read article >

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

If you’re living with paroxysmal nocturnal hemoglobinuria (PNH), does your current treatment plan...

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

If you’re living with paroxysmal nocturnal hemoglobinuria (PNH), does your current treatment plan...
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Iron Supplements for PNH: Can They Help?

If you’re living with paroxysmal nocturnal hemoglobinuria (PNH), you may be considering various t...

Iron Supplements for PNH: Can They Help?

If you’re living with paroxysmal nocturnal hemoglobinuria (PNH), you may be considering various t...
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