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Connect with others who get you with Groups

Bringing together people with similar shared interests, our groups focus on condition-related topics that are top of mind for everyone.

Newly Diagnosed

47 Members

Join a group focused on supporting and guiding people recently diagnosed with the condition

Movement, Activity and Exercise

46 Members

Share how you like to move and find support and encouragement

Food and Recipes

43 Members

Share and discover recipes and eating tips

Prayer

27 Members

Join a group for people of faith to share prayers and receive support

myPNHteam is the social network for those living with paroxysmal nocturnal hemoglobinuria. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for paroxysmal nocturnal hemoglobinuria. myPNHteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgement-free place.

myPNHteam is not a medical referral site and does not recommend or endorse any particular provider or medical treatment. No information on myPNHteam should be construed as medical and/or health advice.

Connect with others who understand.

Connect with others who get you with Groups

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Information You Can Trust.Support When You Need It.

Information You Can Trust.
Support When You Need It.