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Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Can I Expect To Have Continued Bouts Of Fatigue Even Though I Am Now On The IV Drug Treatment?

By A myPNHteam Member • 1 answer

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Are You Satisfied With The Treatments You Receive For PNH?

By myPNHteam • 2 answers

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What’s A Challenge You Didn’t Expect With PNH? How Do You Cope?

By myPNHteam • 2 answers

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How Do You Stay Energized Despite Fatigue? ⚡💪

By A myPNHteam Member • 3 answers

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myPNHteam is the social network for those living with paroxysmal nocturnal hemoglobinuria. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for paroxysmal nocturnal hemoglobinuria. myPNHteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgement-free place.

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