PNH Questions and Answers | myPNHteam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Resources PNH Videos Treatments A-Z Help Center Community guidelines Crisis Accessibility
About myPNHteam
What is myPNHteam Terms of use Privacy policy
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
18 questions
I Bet U 10$
A myPNHteam Member asked a question 💭
posted April 7
•
Be the first to like/hug
Can I Smoke Real Quick
A myPNHteam Member asked a question 💭
posted April 4
•
View reactions
A myPNHteam Member

No

posted April 5
My Partner Has PNH And Has Covid Can He Still Get His Treatment?
A myPNHteam Member asked a question 💭

He hasn't been officially confirmed with Covid but I have and he has symptoms

posted February 3
•
Be the first to like/hug
A myPNHteam Member

Yeah

posted April 5
How Everyone Doing Today
A myPNHteam Member asked a question 💭
posted November 16, 2023
•
View reactions
A myPNHteam Member

Hi I am blessed with another day doing well, I pray all of you are as well

posted November 26, 2023
The First Time You Have A Problem Is If You’re Going Through Something And You’re Trying Something New
A myPNHteam Member asked a question 💭
posted November 15, 2023
•
Be the first to like/hug
What Causes Pñh
A myPNHteam Member asked a question 💭
posted November 2, 2023
•
Be the first to like/hug
What Causes Pnh
A myPNHteam Member asked a question 💭

What is pnh blood dieàse

posted November 2, 2023
•
Be the first to like/hug
A myPNHteam Member

In my situation my Doctor has taught me that most often it develops in the body when out body stops creating the "pigga" gene the protein coating on the outside of of our RBC . As a result the body… read more

posted November 26, 2023
If You Have PNH ,and In My Case Twice I've Had A High D- Dimer Test Results To Be High .
A myPNHteam Member asked a question 💭

Who answers these questions??
Is this normal

posted June 27, 2023 (edited)
•
View reactions
A myPNHteam Member

Hi every one
I have question and hope I don't sound stupid? At my consultation last week I advised my consultant that often when… read more

posted August 16, 2023
Are There Any Assistance Out There To Help With Bills And Or Groceries..
A myPNHteam Member asked a question 💭
posted June 27, 2023
•
Be the first to like/hug
A myPNHteam Member

Try the web site Benefits.gov

posted October 16, 2023
Does PNH Aggravate Ones Cancer, In My Case Leukaemia
A myPNHteam Member asked a question 💭
posted May 26, 2023
•
Be the first to like/hug
A myPNHteam Member

And I would like to know if I could have a bit that

posted August 24, 2023
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in