I have been trying to figure out why I get extreme muscle weakness in my legs for over 2 years now and so far the only thing that seems to help is my Ultimoris infusions every 8 weeks. I get about a week of being able to walk unassisted directly after infusions, then over the course of a day my legs start to buckle and shake and I can’t support myself without a crutch. My hematologist isn’t sure if it’s related to the PNH or not but nothing else has explained it or helped before this. Is… read more