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Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPNHteam Member asked a question 💭

I have been trying to figure out why I get extreme muscle weakness in my legs for over 2 years now and so far the only thing that seems to help is my Ultimoris infusions every 8 weeks. I get about a week of being able to walk unassisted directly after infusions, then over the course of a day my legs start to buckle and shake and I can’t support myself without a crutch. My hematologist isn’t sure if it’s related to the PNH or not but nothing else has explained it or helped before this. Is… read more

March 19
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