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A first symptom of PNH was a high BP. Does anyone know if this will go away with treatment with Ultomiris

February 7
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Will high blood pressure improve with Ultomiris treatment for PNH?

It's great to hear that many of your PNH symptoms have improved since starting Ultomiris! High blood pressure can be related to PNH, particularly when it affects the blood vessels in your lungs (pulmonary hypertension) or causes organ dysfunction.

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Will high blood pressure improve with Ultomiris treatment for PNH?

It's great to hear that many of your PNH symptoms have improved since starting Ultomiris! High blood pressure can be related to PNH, particularly when it affects the blood vessels in your lungs (pulmonary hypertension) or causes organ dysfunction.

Ultomiris is a complement inhibitor that helps reduce hemolysis (the breakdown of red blood cells), which is a major cause of PNH symptoms. As hemolysis decreases with treatment, related complications like organ dysfunction may improve over time.

However, blood pressure issues can have multiple causes, and it's important to monitor this with your doctor. They can help determine if your high blood pressure is directly related to PNH or if it needs separate management.

Keep tracking your blood pressure and discuss any changes with your healthcare provider. Some people see improvements in various symptoms as their PNH becomes better controlled, but everyone's response to treatment is different.

February 7

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