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Types (41)

What Is Bone Marrow Failure in PNH? 8 Facts To Know

PIGA Mutation and PNH: Do Genetics Matter?

Brain Fog, Fatigue, and a Missed Diagnosis: My PNH Story (VIDEO)

4 Ways To Reduce the Cost of Medication (VIDEO)

Treatments (21)

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

6 Alternative Treatments for PNH: Are They Safe and Effective?

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

Iron Supplements for PNH: Can They Help?

Soliris (Eculizumab) (18)

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

Where Hemolysis Happens in PNH: Extravascular (EVH) vs. Intravascular (IVH)

Acquired Aplastic Anemia and PNH: 6 Facts To Know

Pia Sky (Crovalimab Akkz) (8)

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

Can Bone Marrow Transplants Cure PNH? Who Is Eligible for Treatment?

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

Granulocyte Colony Stimulating Factor (G Csf) (1)

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Fabhalta (Iptacopan) (14)

Can Bone Marrow Transplants Cure PNH? Who Is Eligible for Treatment?

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

8 Top Questions About Paroxysmal Nocturnal Hemoglobinuria Answered

Where Hemolysis Happens in PNH: Extravascular (EVH) vs. Intravascular (IVH)

Erythropoietin (Epo) (3)

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

6 Alternative Treatments for PNH: Are They Safe and Effective?

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Epysqli (Eculizumab Aagh) (1)

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

Empaveli (Pegcetacoplan) (13)

6 Alternative Treatments for PNH: Are They Safe and Effective?

What Is Bone Marrow Failure in PNH? 8 Facts To Know

8 Top Questions About Paroxysmal Nocturnal Hemoglobinuria Answered

Iron Supplements for PNH: Can They Help?

Dietary Supplements (2)

6 Alternative Treatments for PNH: Are They Safe and Effective?

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

Corticosteroids (Steroids) (2)

8 Top Questions About Paroxysmal Nocturnal Hemoglobinuria Answered

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Clinical Trials (3)

My Long Journey to the Right PNH Treatment (VIDEO)

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

Bone Marrow Transplant (12)

What Is the Prognosis for Paroxysmal Nocturnal Hemoglobinuria?

Is PNH a Form of Cancer? 7 Facts About PNH and Blood Cancers

PNH and Life Expectancy: Does the Disease Shorten Your Lifespan?

8 Top Questions About Paroxysmal Nocturnal Hemoglobinuria Answered

Blood Transfusions (11)

Iron Supplements for PNH: Can They Help?

PNH and Life Expectancy: Does the Disease Shorten Your Lifespan?

6 Triggers for Paroxysmal Nocturnal Hemoglobinuria: Stress, Infection, and More

My Long Journey to the Right PNH Treatment (VIDEO)

Bkemv (Eculizumab Aeeb) (2)

Complement C3 and PNH: 5 Facts About the Complement System

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

Anticoagulants (Blood Thinners) (8)

6 Triggers for Paroxysmal Nocturnal Hemoglobinuria: Stress, Infection, and More

6 Alternative Treatments for PNH: Are They Safe and Effective?

Budd-Chiari Syndrome and Paroxysmal Nocturnal Hemoglobinuria: Your Guide

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

Androgen Therapy (2)

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

Topics (42)

From ER Visits to Art: My Journey With PNH (VIDEO)

Brain Fog, Fatigue, and a Missed Diagnosis: My PNH Story (VIDEO)

How Connecting With Others Helps Me Live With PNH (VIDEO)

How I Navigate a Rare Condition and Keep Dreaming Big (VIDEO)

News (5)

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

PIGA Mutation and PNH: Do Genetics Matter?

Complement C3 and PNH: 5 Facts About the Complement System

Acquired Aplastic Anemia and PNH: 6 Facts To Know

Expertise Level (21)

Getting Started on myPNHteam

What Is the Ham Test for Paroxysmal Nocturnal Hemoglobinuria?

Where Hemolysis Happens in PNH: Extravascular (EVH) vs. Intravascular (IVH)

6 Alternative Treatments for PNH: Are They Safe and Effective?

Format (42)

4 Ways To Reduce the Cost of Medication (VIDEO)

What Is Bone Marrow Failure in PNH? 8 Facts To Know

My Long Journey to the Right PNH Treatment (VIDEO)

What Is the Ham Test for Paroxysmal Nocturnal Hemoglobinuria?

Multiple Diagnoses (13)

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

Anemia (6)

9 Signs and Symptoms of Paroxysmal Nocturnal Hemoglobinuria

Meet Brandi: How I Overcome Fatigue and Brain Fog With PNH (VIDEO)

Iron Supplements for PNH: Can They Help?

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

Chronic Fatigue Syndrome (Cfs) (1)

Brain Fog, Fatigue, and a Missed Diagnosis: My PNH Story (VIDEO)

Chronic Kidney Disease (Ckd) (1)

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

Deep Vein Thrombosis (Dvt) (3)

Brain Fog, Fatigue, and a Missed Diagnosis: My PNH Story (VIDEO)

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

Inflammatory Bowel Disease (Ibd) (2)

9 Signs and Symptoms of Paroxysmal Nocturnal Hemoglobinuria

Joint Pain (1)

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

Leukemia (2)

Is PNH a Form of Cancer? 7 Facts About PNH and Blood Cancers

Liver Disease (1)

Budd-Chiari Syndrome and Paroxysmal Nocturnal Hemoglobinuria: Your Guide

Meningitis (1)

Pulmonary Hypertension (Ph) (1)

Restless Legs Syndrome (1)

8 Symptoms of Anemia With Paroxysmal Nocturnal Hemoglobinuria (PNH)

Stroke (1)

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

myPNHteam is the social network for those living with paroxysmal nocturnal hemoglobinuria. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for paroxysmal nocturnal hemoglobinuria. myPNHteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgement-free place.

myPNHteam is not a medical referral site and does not recommend or endorse any particular provider or medical treatment. No information on myPNHteam should be construed as medical and/or health advice.

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Types (41)

Treatments (21)

Topics (42)

Multiple Diagnoses (13)

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