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Types (41)

What Is the Ham Test for Paroxysmal Nocturnal Hemoglobinuria?

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

What Causes Paroxysmal Nocturnal Hemoglobinuria? 5 Facts and Risks

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

Treatments (21)

PNH and Life Expectancy: Does the Disease Shorten Your Lifespan?

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Is PNH a Form of Cancer? 7 Facts About PNH and Blood Cancers

Soliris (Eculizumab) (18)

What Is the Prognosis for Paroxysmal Nocturnal Hemoglobinuria?

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Pia Sky (Crovalimab Akkz) (8)

Anticoagulants for PNH: 10 Facts

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

Granulocyte Colony Stimulating Factor (G Csf) (1)

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Fabhalta (Iptacopan) (14)

Anticoagulants for PNH: 10 Facts

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

Can Bone Marrow Transplants Cure PNH? Who Is Eligible for Treatment?

Complement C3 and PNH: 5 Facts About the Complement System

Erythropoietin (Epo) (3)

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

6 Alternative Treatments for PNH: Are They Safe and Effective?

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Epysqli (Eculizumab Aagh) (1)

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

Empaveli (Pegcetacoplan) (13)

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

6 Alternative Treatments for PNH: Are They Safe and Effective?

Complement C3 and PNH: 5 Facts About the Complement System

Dietary Supplements (2)

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

6 Alternative Treatments for PNH: Are They Safe and Effective?

Corticosteroids (Steroids) (2)

8 Top Questions About Paroxysmal Nocturnal Hemoglobinuria Answered

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Clinical Trials (3)

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

My Long Journey to the Right PNH Treatment (VIDEO)

Bone Marrow Transplant (12)

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

8 Top Questions About Paroxysmal Nocturnal Hemoglobinuria Answered

PNH and Life Expectancy: Does the Disease Shorten Your Lifespan?

What Is Bone Marrow Failure in PNH? 8 Facts To Know

Blood Transfusions (11)

Iron Supplements for PNH: Can They Help?

Where Hemolysis Happens in PNH: Extravascular (EVH) vs. Intravascular (IVH)

PNH and Life Expectancy: Does the Disease Shorten Your Lifespan?

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Bkemv (Eculizumab Aeeb) (2)

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

Complement C3 and PNH: 5 Facts About the Complement System

Anticoagulants (Blood Thinners) (8)

6 Triggers for Paroxysmal Nocturnal Hemoglobinuria: Stress, Infection, and More

Budd-Chiari Syndrome and Paroxysmal Nocturnal Hemoglobinuria: Your Guide

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

6 Alternative Treatments for PNH: Are They Safe and Effective?

Androgen Therapy (2)

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

11 Paroxysmal Nocturnal Hemoglobinuria Treatments: Which Is Best for You?

Topics (42)

4 Tips for Taking Charge of Your PNH Diagnosis (VIDEO)

How I Navigate a Rare Condition and Keep Dreaming Big (VIDEO)

Brain Fog, Fatigue, and a Missed Diagnosis: My PNH Story (VIDEO)

How Fatigue Led a Doctor To Diagnose Maegan’s PNH (VIDEO)

News (5)

New Treatments for Paroxysmal Nocturnal Hemoglobinuria

Acquired Aplastic Anemia and PNH: 6 Facts To Know

PIGA Mutation and PNH: Do Genetics Matter?

What Causes Paroxysmal Nocturnal Hemoglobinuria? 5 Facts and Risks

Expertise Level (21)

9 Signs and Symptoms of Paroxysmal Nocturnal Hemoglobinuria

Where Hemolysis Happens in PNH: Extravascular (EVH) vs. Intravascular (IVH)

8 Top Questions About Paroxysmal Nocturnal Hemoglobinuria Answered

What Causes Paroxysmal Nocturnal Hemoglobinuria? 5 Facts and Risks

Format (42)

myPNHteam Stories: Real Stories From Real Members

Where Hemolysis Happens in PNH: Extravascular (EVH) vs. Intravascular (IVH)

What Is Paroxysmal Nocturnal Hemoglobinuria? 8 Facts About a Rare Blood Disorder

6 Triggers for Paroxysmal Nocturnal Hemoglobinuria: Stress, Infection, and More

Multiple Diagnoses (13)

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

Anemia (6)

Acquired Aplastic Anemia and PNH: 6 Facts To Know

Iron Supplements for PNH: Can They Help?

8 Symptoms of Anemia With Paroxysmal Nocturnal Hemoglobinuria (PNH)

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

Chronic Fatigue Syndrome (Cfs) (1)

Brain Fog, Fatigue, and a Missed Diagnosis: My PNH Story (VIDEO)

Chronic Kidney Disease (Ckd) (1)

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

Deep Vein Thrombosis (Dvt) (3)

Abdominal Pain and Bloating With Paroxysmal Nocturnal Hemoglobinuria

Brain Fog, Fatigue, and a Missed Diagnosis: My PNH Story (VIDEO)

Inflammatory Bowel Disease (Ibd) (2)

9 Signs and Symptoms of Paroxysmal Nocturnal Hemoglobinuria

Joint Pain (1)

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

Leukemia (2)

Is PNH a Form of Cancer? 7 Facts About PNH and Blood Cancers

Liver Disease (1)

Budd-Chiari Syndrome and Paroxysmal Nocturnal Hemoglobinuria: Your Guide

Meningitis (1)

Pulmonary Hypertension (Ph) (1)

Restless Legs Syndrome (1)

8 Symptoms of Anemia With Paroxysmal Nocturnal Hemoglobinuria (PNH)

Stroke (1)

6 Types of Pain Paroxysmal Nocturnal Hemoglobinuria Can Cause

myPNHteam is the social network for those living with paroxysmal nocturnal hemoglobinuria. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for paroxysmal nocturnal hemoglobinuria. myPNHteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgement-free place.

myPNHteam is not a medical referral site and does not recommend or endorse any particular provider or medical treatment. No information on myPNHteam should be construed as medical and/or health advice.

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Types (41)

Treatments (21)

Topics (42)

Multiple Diagnoses (13)

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