symptoms of anemia with paroxysmal nocturnal hemoglobinuria pnh and paroxysmal nocturnal hemoglobinuria | myPNHteam

Connect with others who understand.

sign up Log in
About myPNHteam
Powered By
Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "symptoms of anemia with paroxysmal nocturnal hemoglobinuria pnh"

reset
My Partner Has PNH And Has Covid Can He Still Get His Treatment?
A myPNHteam Member asked a question 💭

He hasn't been officially confirmed with Covid but I have and he has symptoms

A myPNHteam Member

Yeah

What Causes Pnh
A myPNHteam Member asked a question 💭

What is pnh blood dieàse

A myPNHteam Member

In my situation my Doctor has taught me that most often it develops in the body when out body stops creating the "pigga" gene the protein coating on the outside of of our RBC . As a result the body… read more

What Has Been The Most Challenging Part About Living With PNH?
A myPNHteam Member asked a question 💭
A myPNHteam Member

I get light headed easily and have to squat down quickly.

How Has PNH Impacted Your Life?
A myPNHteam Member asked a question 💭
A myPNHteam Member

I feel like it has taken away my trust in others and in a away it took away trust others had in me. Iv been dealing with for so long but no one took me seriously. I'm still going through the process… read more

How And When Were You Diagnosed With PNH?
A myPNHteam Member asked a question 💭
A myPNHteam Member

Hey @A myPNHteam Member - thanks for responding! Were you diagnosed by a doctor? How did you know it was pnh?

Does PNH Aggravate Ones Cancer, In My Case Leukaemia
A myPNHteam Member asked a question 💭
A myPNHteam Member

And I would like to know if I could have a bit that

If You Have PNH ,and In My Case Twice I've Had A High D- Dimer Test Results To Be High .
A myPNHteam Member asked a question 💭

Who answers these questions??
Is this normal

•
View reactions
A myPNHteam Member

Hi every one
I have question and hope I don't sound stupid? At my consultation last week I advised my consultant that often when… read more

What Causes Pñh
A myPNHteam Member asked a question 💭
I Need Help With Neuropathy Itch After Shower
A myPNHteam Member asked a question 💭

The itch is so severe it hurts.

•
View reactions
Are There Any Assistance Out There To Help With Bills And Or Groceries..
A myPNHteam Member asked a question 💭
A myPNHteam Member

Try the web site Benefits.gov