If You Have PNH ,and In My Case Twice I've Had A High D- Dimer Test Results To Be High . | myPNHteam

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If You Have PNH ,and In My Case Twice I've Had A High D- Dimer Test Results To Be High .
A myPNHteam Member asked a question 💭

Who answers these questions??
Is this normal

posted June 27, 2023 (edited)
•
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A myPNHteam Member

Hi every one,
I have question and hope I don't sound stupid? At my consultation last week I advised my consultant that often when sat watching TV etc I suffer a sudden bout of lack of breath causing me to gasp and gulp, yet! when I go for my morning jog or do my daily weight lifting session I never get breathless!. My consultant, who may well be right said that when sit down my heart beat slows and my red blood cells are not getting oxygenated but when I go jogging or weigh lifting my heart beat increases and I breath more deeply thus increasing the oxygen in my red blood cells.
My question is> Has any one else had this situation ? Keep safe

posted August 16, 2023
A myPNHteam Member

Tiktok.com/@asledin8888

posted July 15, 2023
A myPNHteam Member

Is my question going to get answered

posted June 27, 2023

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