Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Personal Assistant What is This Site Help Center Crisis
Powered By
Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Has PNH Impacted Your Life?

myPNHteam asked a question 💭
San Francisco, CA
March 23, 2023
•
Be the first to like/hug
A myPNHteam Member

I feel like it has taken away my trust in others and in a away it took away trust others had in me. Iv been dealing with for so long but no one took me seriously. I'm still going through the process but since December of 2021 iv seen multiple doctors and specialists and I just get sent to more doctors. People thought I was faking it or being over dramatic.

September 13, 2023

Related content

View All

My Hematocrit Is In The Normal Range, But I Still Experience Fatigue And Shortness Of Breath. Is This The Disease Or Old Age? Thanks!!

A myPNHteam Member asked a question 💭
Hernando, MS
October 24

What Treatment Do I Need To Do To See If I Have Any Blood Clots Or Anything With My Heart That Can Be Seen Or Spotted As Soon As Possible

A myPNHteam Member asked a question 💭
Belton, TX
November 7

What Treatment Do They Use For Pregnant Women

A myPNHteam Member asked a question 💭
Fort Myers, FL
August 19

PNH and Life Expectancy: Does the Disease Shorten Your Lifespan?
How Connecting With Others Helps Me Live With PNH (VIDEO)
How Flow Cytometry Works for Diagnosing PNH
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in