building your community finding others with pnh and paroxysmal nocturnal hemoglobinuria | myPNHteam
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Can Teritry Sphyliss Cause Pnh
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What Causes Paroxysmal Nocturnal Hemoglobinuria? Read Article...
What Causes Pnh
A myPNHteam Member asked a question 💭

What is pnh blood dieàse

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A myPNHteam Member

In my situation my Doctor has taught me that most often it develops in the body when out body stops creating the "pigga" gene the protein coating on the outside of of our RBC . As a result the body… read more

How Has PNH Impacted Your Life?
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A myPNHteam Member

I feel like it has taken away my trust in others and in a away it took away trust others had in me. Iv been dealing with for so long but no one took me seriously. I'm still going through the process… read more

My Partner Has PNH And Has Covid Can He Still Get His Treatment?
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He hasn't been officially confirmed with Covid but I have and he has symptoms

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A myPNHteam Member

Yeah

How And When Were You Diagnosed With PNH?
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A myPNHteam Member

Hey @A myPNHteam Member - thanks for responding! Were you diagnosed by a doctor? How did you know it was pnh?

What Has Been The Most Challenging Part About Living With PNH?
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A myPNHteam Member

I get light headed easily and have to squat down quickly.

Does PNH Aggravate Ones Cancer, In My Case Leukaemia
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A myPNHteam Member

And I would like to know if I could have a bit that

If You Have PNH ,and In My Case Twice I've Had A High D- Dimer Test Results To Be High .
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Who answers these questions??
Is this normal

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A myPNHteam Member

Hi every one
I have question and hope I don't sound stupid? At my consultation last week I advised my consultant that often when… read more

What Causes Pñh
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How Old Are You?
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A myPNHteam Member

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