Hey @A myPNHteam Member - thanks for responding! Were you diagnosed by a doctor? How did you know it was pnh?
I don't know
I have learned it can be diagnosed in different ways based on different tests and body situations
For me it was my labs, bone marrow biopsy an when I told the Dr that my urine was Red that was one… read more
Hi I am blessed with another day doing well, I pray all of you are as well
I feel like it has taken away my trust in others and in a away it took away trust others had in me. Iv been dealing with for so long but no one took me seriously. I'm still going through the process… read more
What is pnh blood dieà se
In my situation my Doctor has taught me that most often it develops in the body when out body stops creating the "pigga" gene the protein coating on the outside of of our RBC . As a result the body… read more
Who answers these questions??
Is this normal
Hi every one
I have question and hope I don't sound stupid? At my consultation last week I advised my consultant that often when… read more