Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Research Is Being Done To Show A Linkage Between Covid Infections And Pnh Exacerbation Or Pnh Origination?

By A myPNHteam Member 4 answers
View Answers

Is Overly Dry, Crepey Skin A Thing With PNH Or Ultomiris? Since Starting Ultomiris My Skin Has Gone Extremely Dry And Papery.

By A myPNHteam Member 1 answer
View Answers

What Treatment Do I Need To Do To See If I Have Any Blood Clots Or Anything With My Heart That Can Be Seen Or Spotted As Soon As Possible

By A myPNHteam Member 2 answers
View Answers

Ciclosporin Didn't Work For Me .what Woud Be WY Forward

By A myPNHteam Subscriber 1 answer
View Answers

Unlock advice from real people living with PNH.

Join the community for free
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in