PNH Questions and Answers | myPNHteam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Resources PNH Videos Treatments A-Z Help Center Community guidelines Crisis Accessibility
About myPNHteam
What is myPNHteam Terms of use Privacy policy
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
18 questions
I Don't Have One At The Moment
A myPNHteam Member asked a question 💭
posted May 19, 2023
•
Be the first to like/hug
What Has Been The Most Challenging Part About Living With PNH?
A myPNHteam Member asked a question 💭
posted March 23, 2023
•
Be the first to like/hug
A myPNHteam Member

I get light headed easily and have to squat down quickly.

posted September 13, 2023
How Has PNH Impacted Your Life?
A myPNHteam Member asked a question 💭
posted March 23, 2023
•
Be the first to like/hug
A myPNHteam Member

I feel like it has taken away my trust in others and in a away it took away trust others had in me. Iv been dealing with for so long but no one took me seriously. I'm still going through the process… read more

posted September 13, 2023
How And When Were You Diagnosed With PNH?
A myPNHteam Member asked a question 💭
posted March 23, 2023
•
Be the first to like/hug
A myPNHteam Member

Hey @A myPNHteam Member - thanks for responding! Were you diagnosed by a doctor? How did you know it was pnh?

posted April 19, 2023
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in