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Questions & Answers

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Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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I was diagnosed with PNH in 2018. I am now 70 years old and need my hip replaced what should I expect for recovery.

A myPNHteam Member · 5 answers
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Has anyone else experienced extreme heartrace (sometimes leading to feeling slight panic) and pressure in the chest in the night?

A myPNHteam Member · 4 answers
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What foods should PNH patients avoid?

A myPNHteam Member · 1 answer
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After starting treatment my blood levels keep going down but the doctor doesn’t seem concerned. Should I be concerned about this?

A myPNHteam Member · 2 answers
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