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Real members of myPNHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What treatment do they use for pregnant women

A myPNHteam Member asked a question 💭
Fort Myers, FL
August 19, 2025
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A myPNHteam Member

Hi @A myPNHteam Member! This is such an important question. When it comes to treating PNH during pregnancy, the approach can vary a lot depending on individual circumstances, so it’s something that’s closely managed by a hematologist and OB team. If you’re exploring this for yourself or someone close to you, definitely speak with a doctor who has experience managing PNH in pregnancy!

P.s if there are things along the way that you learn about treatment and pregnancy with your doctor, I'd love to know! Please share

August 29, 2025
myPNHteam

Pregnancy with PNH requires careful management under the supervision of both a PNH specialist and a maternal-fetal medicine specialist who handles high-risk pregnancies. The main treatments used during pregnancy include:

• Anticoagulants (blood thinners) to prevent blood clots
• Increased frequency of blood transfusions
• Show Full Answer

Pregnancy with PNH requires careful management under the supervision of both a PNH specialist and a maternal-fetal medicine specialist who handles high-risk pregnancies. The main treatments used during pregnancy include:

• Anticoagulants (blood thinners) to prevent blood clots
• Increased frequency of blood transfusions
• Possible adjustment of PNH medications

It's important to note that not all anticoagulants are safe during pregnancy. For example, warfarin should be avoided as it can cause birth defects. Regular monitoring is essential as pregnancy with PNH can increase risks of:

• Hemolytic anemia
• Low white blood cell and platelet counts
• Blood clots
• Preeclampsia

If you're considering pregnancy, it's crucial to discuss your plans with your healthcare team beforehand to develop an appropriate treatment strategy.

August 19, 2025

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