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How Do You Manage PNH-related Pain Or Discomfort? 🤕💊
Pain and discomfort can be part of living with PNH. Share the strategies or treatments that help you alleviate symptoms and improve your day-to-day well-being. Let’s support each other by exchanging helpful tips! 💬
My Hematocrit Is In The Normal Range, But I Still Experience Fatigue And Shortness Of Breath. Is This The Disease Or Old Age? Thanks!!
Has Anyone Else Started Treatment With Ravulizumab (Ulromiris)? How Did You Feel After The First Few Infusions? 🤞🏻
Is Overly Dry, Crepey Skin A Thing With PNH Or Ultomiris? Since Starting Ultomiris My Skin Has Gone Extremely Dry And Papery.
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